My Little Angel (Hydrocephalus Warrior)


Hi everyone! I am a mother and asking for a little help from you I know that it's my responsibility as a parent to provide for the needs of my child in all aspects, but unfortunately, because of some circumstances and challenges, we have been thru since we discovered her condition we can't provide her medical needs alone. That is why we need help from you, as you can see on my cover, that is our little warrior she was diagnosed having hydrocephalus with rocker bottom feet and consistent close fists. She undergoes a lot of laboratories when I gave birth to her, it has been agreed that she will undergo VP Shunting after she was born that's why there were a lot of tests happened. Unfortunately one of the doctors that handle her suggested that the surgery can be postponed since she was so tiny. She was just around 1.8-2.1 kls at that time that's why one of Pedia's doctors suggested that the surgery can be postponed and the surgeons agreed. We lasted for almost a month in the public hospital and when we got home the doctor said that every month I need to check the size of the head and if I think that her head kept on growing I will schedule her a check-up so they can check if she is ready for the surgery. She was around 4 months old when she had the surgery and we are thankful that she survive that surgery called VP Shunting- VP Shunting is where you will put a tube from her head down to her stomach wherein too much water from her head/brain will flow from that tube down to her stomach so she could pee it. That tube is forever that's why people with hydrocephalus are not allowed to do physical activities that may affect their condition. After her operation, she needs to be checked every month but since we are lacked budget because of past expenses we just bring her for a check-up if we had a budget already wherein it must be every month. Aside from that one of our goals is to make her feet and hands better because as I mentioned earlier her foot is a rocker bottom foot and her hand is consistently closed, though we do our best to massage her foot and feet still we are not a professional on this area that's why her Ortho prescribed her to undergo Physical Therapy Rehab though last months while we are waiting for her schedule on her surgery of VP Shunting we try casting her feet we brought her to an Ortho near our town since the doctors that handle her was from another town so back to the story, we tried casting her feet with another ortho because I am afraid that her feet might harden if we don't do about it while waiting for her surgery that's why she had a session every week her foot was being cast. But now after she undergoes the surgery we are now focusing again on her feet and hands which is why she undergoes therapy rehab every week as well as I was saying we need help with her weekly-monthly medical assistance, so we could continuously bring her to the therapy rehab. Aside from all the conditions that I have mentioned recently as well almost 2 months after her surgery, she was diagnosed having a Coloboma Eye in her retina which is why until now she cannot she us though I have already a feeling that there is something wrong with her eyes since she has Hydro I did not expect it to be like that a Coloboma Eye in the retina is an eye condition wherein her retina was like does not exist because it has a whole and based on what the doctor said there is no treatment on that condition because it was the retina that was affected. As a mother, it is very hard on my part to see my child experiencing this kind of suffering especially since I can't do something to make it disappear. All that I can do is to make my little warrior feel the loved that she needs and the assistance that her condition needs for her to be better despite what she is going thru. That's why my fellow friends, and people I am asking for help from everyone.

Please help us reach the goal amount that we need for the following weeks and months any amount is much appreciated. God bless us and Thank you so much!
There are no donations
No results have been found

Suzette M. Rapacon

Created Mar 24, 2023 Olongapo City, Philippines

0$ of 1,000$ goal

0% Raised by 0 Donations Medical