A Mother’s Fight for Life: Help Umi Sumiati Overcome Myasthenia Gravis Meet Umi Sumiati:Born on June 2, 1974, Umi is a loving mother, a kind-hearted soul, and someone who has always put her family first. But today, she needs our help more than ever. In June 2022, Umi underwent thyroid surgery. Since then, her health has taken a devastating turn. She’s now in a battle for her life against
Myasthenia Gravis—a rare and debilitating autoimmune disease that has robbed her of her strength, her independence, and even the ability to swallow food. For the past
10 months, Umi has been entirely dependent on her family for all daily activities. Her condition has worsened to the point where she requires around-the-clock care.
Her Current Struggle On
December 26, 2024, Umi was rushed to the ICU, where she underwent a tracheostomy to help her breathe. She remains in critical condition, and her journey is far from over. Doctors have recommended advanced treatments like
Plasmapheresis and
IVIG therapy, but these can only be performed at a specialized Type A hospital. Securing a referral to such a hospital has proven to be an uphill battle. In the meantime, her family is doing everything they can to keep her stable. Once she is discharged, Umi will need:
- Oxygen tanks (2 units)
- Suction pump and tubing
- Silicon NGT tubing for feeding
Even her life-saving medication, Mestinon, is not readily available at the hospital. The family must purchase it privately at
Rp. 16,000 - 20,000 per tablet, with her daily requirement now increased to 4 tablets.
Why Your Help Matters Imagine being unable to breathe, eat, or move without assistance. This is Umi’s reality. Her family is struggling to keep up with the mounting medical expenses, but they cannot do this alone. Your support can be the light in their darkest hour. Your donation can:
- Help Umi access advanced treatments at a specialized hospital
- Provide critical medical equipment for her home care
- Ensure she receives her essential medication daily
Every Second Counts Umi’s family is fighting for her life, but they need our help to give her the chance she deserves. Your generosity can make a world of difference. Every donation, no matter how big or small, brings hope to Umi and her loved ones. Please
donate now and share her story. Together, we can help Umi reclaim her strength, her dignity, and her life.
Thank you for opening your heart to Umi.